With much anticipation and excitement we arrived at the Glens Falls Civic Center at 2:00PM on Thursday, February 18, 2010. We met Dawn in the office, but she was in the middle of some work so we waited out side the office area, where Charlotte was able to run up and down a wide hallway. She must have run up and down about 15 times. Amazing amount of energy! We had...

We had a fun filled afternoon at Jillian’s of Albany on North Pearl St, in downtown Albany. Charlotte got to sit on Santa Claus’ lap again, the second time in two days! Wow, that jolly old man does manage to get around! This time she got a kitchen set with pots an pans. This is great as she is getting a kitchen for Christmas (shhhh!) They also had...

Today we went on an AquaDuck Tour of Albany with Starlight Children’s Foundation.  It was a blast, and very cool to see and learn about our wonderful state capital from the fun and entertaining environment of an...

On Thursday – Toby’s 35th Birthday – we went to Six Flags: The Great Escape in Lake George, NY.  This was a “Great Escape” Day Out with Starlight Children’s Foundation. We had a great time, and Gramma Darlene and Grampa Ron came too.  We went on the Giant Wheel, went to Wiggles World and drove the Big Red Car.  We saw the Pirate...

 Today we went over to Agway in Fort Edward, NY to join in the fun of the Adirondack Cowgirls Drill Team at their Benefit Horse Ride for Charlotte.  Wow, this was super cool, and we were touched very much by the kindness of this group of wonderful ladies. Here is the video of Charlotte on her very first horsey ride!Here are some still shots of us having...

When Charlotte’s condition was first diagnosed we came across a charity called Songs of Love (www.songsoflove.org) that have singer/songwriters who work with them to create original songs for critically and terminally ill children. We submitted Charlotte’s information, her likes, her pet’s, and a bunch of other details, and then today we received...